More great results!!

We were up at LOC today and to my surprise there was another 2 mm measured at the back and quizically a 1mm reduction at the sides (?) making a new severity percentage of 102%. I was convinced there was not going to be a change so this has really cheered me up today.

Here are the statistics:

Age months 15
Head Circumference (cm) 50.1
Head Width mm 153
Head Depth mm 150
Severity 102.00%

A few pictures for the record taken today:

Next review in 3 weeks on16th May.

Finley's singing

He can't walk, talk and he has no teeth but he can hum a tune!! Or "da" a tune should I say.

Do we have a gifted child? Is it 12345, once I caught a fish alive this week and Beethoven's 5th next???

Another review tomorrow

We are up at LOC again tomorrow - I don't think there will be any change as I measured his head with a tape measure and it is still only around 50 cm.

We've had a couple of issues. We have had great weather here, lots of lovely warm sunny spring days. Finley's head got a bit pink where there is a gap in the helmet. Normally we would have put a sun hat on him but this is just impossible. I'm spraying factor 30 on the exposed part of his head and rubbing it in his hair. Not ideal.

Finley has had a helmet free 24 hours due to temperature and sickness. I think he has had more trouble sleeping without it actually!

I dont know how anyone can get used to it. I hate it already. I cannot kiss or stroke Finley when he needs consoling and I really miss that. In the lovely weather it just seems a bit cruel for him to sweating underneath it. He gets quite a lot of attention but most people think that I am some over protective mother who doesnt want him to bash his head on anything.

I've been lurking on an American message board for older kids with this problem It seems that children older than 2 can be fitted with a helmet, albeit after a long struggle with health professionals. Then they just wear it at night. I would love that to be the case with Fin. I cant see them agreeing to this at LOC though - Peter thinks we would only get 50% of the benefit.

LOC review - progress at last.

We had an LOC review today and Finley's head has grown 2mm ALL AT THE BACK!! Hurray we have some progress at last. Saeed said that the growth normally starts at the bottom of the neck and rises and his calipers may not catch the growth that is right at the bottom. I was pretty sure there would be a change as you can see it.

Here are the stats:

Age months 14.5
Head Circumference (cm) 50.1
Head Width mm 154
Head Depth mm 148
Severity 104.05%

So everything is moving in the right direction - we've just got to keep going now.
It's not really a problem for us, Finley sleeps through the night in it and with his walking and climbing antics I actually feel he is safer with it on. When we take it off for cleaning there always seems to be an incident and his head ends up with some kind of bruise on it!

Next review at LOC is in 3 weeks time on 25th April.

Video of Finley walking

If you want to see Finley's first steps please scroll down to the bottom of the screen and click the arrow to play. Oh and also his new trick - clapping hands!!