Monday, 12 October 2009
Sunday, 11 October 2009
18 months on
I've been meaning to update my blog to where we are today with Finley. I'm going to add some pictures when I get a chance.
Its important for all would be helmeters to see and hear what has happened to Finley in the time after we stopped treatment. Remember that Finley was over 1 year old when we started. I was looking for reassurance that it would've made a difference to start so late.
I think that there has been a marked change for the better in his head shape as time has gone on. Whether that is because I'm getting used to it being the shape it is, or with his hair sytle it makes it look better I don't know. Its difficult to tell on a day to day basis. That's why pictures are important and I'll post them up soon. A friend who I don't often see said only last week, she was amazed at the improvement in his head shape which was encouraging.
My gut feel is that it was probably not effective to have had treatment. It was such a hard thing to decide to do and such a horrible thing to have to go through but, knowing what I know now, I would not have gone through with it. If we had caught it earlier when growth was more rapid we may have had a more successful conclusion but that was not what happened so we will never know.
It is my opinion that parents must consider the severity of the head shape before embarking on treatment which has been so controversial with the NHS advice.
Next time I pass Kingston I'm planning to pop in and hope to get some new measurements. It will be interesting for us but also useful for this blog.
Thanks to you all for your lovely comments. Good luck to anyone who reads this blog hoping to find some answers. I really hope that I've helped you in some small way.
Watch this space for more photos and when I get round to it, some updated measurements.
Its important for all would be helmeters to see and hear what has happened to Finley in the time after we stopped treatment. Remember that Finley was over 1 year old when we started. I was looking for reassurance that it would've made a difference to start so late.
I think that there has been a marked change for the better in his head shape as time has gone on. Whether that is because I'm getting used to it being the shape it is, or with his hair sytle it makes it look better I don't know. Its difficult to tell on a day to day basis. That's why pictures are important and I'll post them up soon. A friend who I don't often see said only last week, she was amazed at the improvement in his head shape which was encouraging.
My gut feel is that it was probably not effective to have had treatment. It was such a hard thing to decide to do and such a horrible thing to have to go through but, knowing what I know now, I would not have gone through with it. If we had caught it earlier when growth was more rapid we may have had a more successful conclusion but that was not what happened so we will never know.
It is my opinion that parents must consider the severity of the head shape before embarking on treatment which has been so controversial with the NHS advice.
Next time I pass Kingston I'm planning to pop in and hope to get some new measurements. It will be interesting for us but also useful for this blog.
Thanks to you all for your lovely comments. Good luck to anyone who reads this blog hoping to find some answers. I really hope that I've helped you in some small way.
Watch this space for more photos and when I get round to it, some updated measurements.
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