His head had only grown 1mm in width and 1mm front to back since the last measurements in October. With such little growth I am so pleased we decided to stop when we did.
Finley's final severity percentage is 97% which for some would be where they would start. I was quite disappointed with these results but today the before and after pictures arrived in the post and we are now quite pleased with the results! I can see how much progress we have made. Finley has lost the point to his head and you can really see the difference.
I think the last picure above really shows how much his head has changed. Here are the before and after scan pictures:
Interestingly and unbeknown to LOC we stopped putting the helmet on Finley during the day from the end of July. I am pleased to see that it did not have any detrimental effect to the figures and his head has only grown out 1 mm in the last 6 weeks when he has been completely helmetless.
I am hoping that in about 6 months I can ask LOC to remeasure Finley's head to see what natural change is made. I would've found this useful and maybe anyone who comes across this blog may find it useful too.
So there you have it. Here is all the information you may need to see an example of the results of helmet treatment on an older baby. I hope some of you have and will find the journey diary useful when considering what to do with your own children.
78 comments:
Thanks for sharing your story. My son has a similar condition and is now 2. It has improved quite a bit on it's own. I just wanted to say what a gorgeous little boy you have and that his head really is improved quite dramatically in from the photos you show. Best to all.
I have been looking for a story that sounded alot like mine and yours does! My son is just as cute as a button like yours. Thank you for sharing your story! My son is now three and his head has improved a lot on its own. I often had wondered if there was any other person out there that had problems with the helmet like we did.Good luck to you all. Your son really is beautiful!!!!
I really appreciate your comments guys, thanks!
S
I just read your story, what a beautiful little boy - such a handsome face! My son has exactly the same thing but he is now 14 months old. Interestingly, my son had the same head growth statistics as Finley, he is now around 25% for length and weight, and 98th % for head circumference (50.1cm)- my husband's is a whopping 65cm diameter which explains why. My son had the same rapid head growth in the first 12 months which might explain why he developed the flat back area too. It's so relieving to see how much Finley has improved!!
Can I ask, when did Finley start walking? It's just that my son has not even started to walk at 14m and I was wondering if it was because of his larger head in proportion to his body?
My son is three MONTHS old and it's obvious he has brachycephaly although he has not been diagnosed. Are there positioners for crib, stroller and such that you can point me to? I want to try to improve his condition before his next month's doctor appointment as I am sure it's all positional. If no luck, then I will get him referred. Your little ones are just precious! Thanks for sharing your informative story. It touched my heart. Thanks ahead of time for the recommendations.
I havent been on for a while but have just seen two new posts.
Finley only started crawling just before his 1st birthday and was not walking I think a few months after that. Check the blog - I think there is an entry Finley's first steps.
We found the sleepcurve mattress was great (and I'm sure I saw an improvement for time) although Finley had a serious of colds (the first one at two weeks) and we had to keep his head elevated to help with his breathing at night so we didnt use it as often as we liked.
Thank you both for your kind comments
Hope you still read this but I just came across this blog as my son is 5 and has brachycephaly. I was devastated when I found out especially as I did not realise until he was 4 when a Cranial Osteopath pointed it out. I always thought he had a big head and had mentioned concerns to the Health Visitor but as usual was fobbed off, I just thought it was him. After trawling through photos from birth to present I realised that it started developing around 6 months, was bad at 12 months, at 2.5 he looked out of proportion with a very wide forehead but somehow at 5 he looks good from the front even his profile is ok if a bit flat. I have been through hell and back wishing I had noticed so that I could reposition and helmet but I do feel there has been some natural correction and console myself with well maybe it would not have been a lot better if we had treated it. In fact the shape of his head is very much as your son is in the final picture and looking at your son he does look very good compared to your before picures so I think you did a good job as I think your son was worse to start with than mine so even though he may have had some natural correction you have probably helped him along. I have read that back sleeping in general can cause developmental delay, my son also crawled about 12 months and walked at 14 months, he was very late talking and at 3 started speech therapy as was hardly saying a word. However, now he is one of the brightest in the class, excellent at reading, maths and loves French and speaks perfectly and lots, so I think I can breathe a sigh of relief. All said and done with all the research I have done which is lots I can honestly say I am totally opposed to back sleeping I think it is unnatural and there is no proof to show it reduces sids, the reason sids has fallen is the different ways babies deaths are being recorded, before any small infant death was recorded as sids now they are recorded as heart defects, etc. The medical profession has a lot to answer for there is so mcuh suffering being caused and this has been going on for 15 years when are they going to wake up and warn parents that sids is extrememly rare but head deformities caused by black sleeping is extremely common, they say 1 in 60 but thats conservative as many parents like myself have never reported it as they did not realise until it was too late or stil havent realised.
What a great story - much like the one we are currently on as well! Did you ever find much natural improvement after the helmet?
Hiya, thank you for this blog; it's really interesting. My son, also called Finlay, also has brachycephaly. He's 14 weeks now, and I'm hoping we have caught it soon enough to make a difference with repositioning; but it is really hard work lugging him around all the time when I also have a toddler!
I was really interested to read about your nuchal translucency scan; as I went through EXACTLY the same thing, and even had an amnio (to prepare us)only to receive the all-clear; but I am now wondering whether there is a link between nuchal thickness and instances of brachycephaly - i.e. would they have had it anyway, regardless of how we let them sleep, etc. It certainly makes you wonder, doesn't it?
Anyway, wishing you and your beautiful family all the very best for the future.
Thanks for sharing the story. You have a very handsome little boy there and I wish the best for you. I believe our 6 month old has the wide head condition and we're evaluating our options. But I've learned a lot and have been very encouraged by your blog. And yes, I'm perturbed by the back sleeping proponents in their failure to tell you about the flat head issues.
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