Finley’s right kidney does not function – it is just a bunch of cysts. The condition is called multicystic dysplastic kidney. This was highlighted at our ante natal scans and we have been seeing a renal specialist from day one. His other kidney is good and is working for both. RP was hoping the bad kidney shrivels up and disintegrates on its own. Unfortunately it’s still as large as life and hasn’t changed in size since our last visit in July. He’s not too worried about it but wants to see us in a year’s time. They might have to remove it if it still has not shrunk. It can cause hypertension and possibly become cancerous if it’s left.
We then talked about his head. (At the last visit RP was confident that it was not effecting his development but didn’t really touch on the cosmetic issues). He agreed that Finley was sporting a fine example of the condition (!) But he talked about helmet therapy as a waste of time and money. He was still expecting it to grow out on its own over time. I then told him we had decided on helmet therapy and told him I was disappointed that we hadn’t been given any advice on this course of action. If only he had known more about this condition he could have measured the severity back in July.
He was actually quite apologetic. He stressed that he was a renal specialist and this wasn’t his field. He even agreed in hindsight he should’ve referred us back to the GP to get seen by a more specific consultant. Maybe that still wouldn’t have directed us down the right road as NHS professionals haven’t been pro helmet therapy by anyone I have come across since doing my research. I had some consolation from his regretful attitude. Perhaps if he ever comes across this again he will take a different approach – that’s all we can hope for.
We then talked about his head. (At the last visit RP was confident that it was not effecting his development but didn’t really touch on the cosmetic issues). He agreed that Finley was sporting a fine example of the condition (!) But he talked about helmet therapy as a waste of time and money. He was still expecting it to grow out on its own over time. I then told him we had decided on helmet therapy and told him I was disappointed that we hadn’t been given any advice on this course of action. If only he had known more about this condition he could have measured the severity back in July.
He was actually quite apologetic. He stressed that he was a renal specialist and this wasn’t his field. He even agreed in hindsight he should’ve referred us back to the GP to get seen by a more specific consultant. Maybe that still wouldn’t have directed us down the right road as NHS professionals haven’t been pro helmet therapy by anyone I have come across since doing my research. I had some consolation from his regretful attitude. Perhaps if he ever comes across this again he will take a different approach – that’s all we can hope for.
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